Friday, April 17, 2009

Cystic Fibrosis Foundation Walk...(and prayer request)

A good friend of mine that I work with (Ben Smagacz) has a soon to be brother in law as well as sister in law who are both dealing with Cystic Fibrosis and without the help of donations to the foundation in the past, they might not have made it to today!
Cystic Fibrosis effects an estimated 30,000 children so that's not enough to get federal funding for research. They also do not consider it a terminal disease. This means that most of the children who apply for the Make a wish Foundation to have their dreams come true are denied since they don't consider it a terminal disease.
Ben is participating in the CF walk on May 17th and needs donations!!! If you feel compelled to help him out...please go HERE to review his Great Strides personal walk homepage...
If you would prefer to mail in any donations you can do so at this address:
Cystic Fibrosis Foundation of WNY
Attn: Ben Smagacz
4976 Transit Rd. Depew, NY 14043
He is very close to his goal- but I would LOVE to help him surpass it!
If you cannot donate, please keep his family and Tyler in your prayers.
Thank you!

1 comment:

Anonymous said...

Shannon thanks for support this. I want to let you know that on Jan 4th of this year Tyler Passed away from his battle with CF. Im doing the walk again this year but where I live now in NC.

This is my New site if you would like to Donate

http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=6705&idUser=307826